Humanity & Inclusion has launched OpenTeleRehab, a new innovative software specifically designed by its experts to provide quality rehabilitation services for isolated populations. The software opens first in Vietnam, with plans to expand to other countries.
In Vietnam, more than 64% of the population live in rural areas, significantly limiting access to rehabilitation care. This is particularly true for people with disabilities for whom traveling long distances can be challenging. There are fewer than one physical therapist per 10,000 people in Vietnam, and only 2% of Vietnamese children receive rehabilitation care when needed.
By contrast, 80% of the population uses a smartphone and 4G coverage is at 95%. Even families with low incomes typically have access to a mobile device. With its background in innovative humanitarian response and rehabilitation expertise, Humanity & Inclusion designed the OpenTeleRehab software as an adaptive solution to ensure both access to and quality of care for patients who need rehabilitation.
The software with developed in partnership with hospitals in Vietnam and JAMK University. Its development was funded by USAID and the Botnar Foundation.
Custom care, accessible to all
“The application will provide remote rehabilitation services, increasing access to care in contexts where the rehabilitation workforce is limited,” says Martin Jacobs, Humanity & Inclusion rehabilitation technical advisor and OpenTeleRehab project manager. “Patients are taught in service by their therapist how to use the patient mobile application, then, once they are home, they can access their custom treatment plan by smartphone. The treatment plan can include exercises, information, educational material and questionnaires. Therapists can organize regular follow-up audio or video calls and track patient progress and adherence to the plan.” Read a full Q&A with Jacobs about this software launch.
OpenTeleRehab aims to increase access to rehabilitation services by strengthening hospital discharge, transition of care and community-based follow-up. It should help prevent repeat hospital stays for people with long-term needs, lower patient costs, optimize functioning and reduce obstacles for individuals with disabilities in central Vietnam. Its offline features ensure that it can easily be used in contexts with limited internet access, and a child-friendly version of the patient mobile app increases engagement among young users.
Implementation and next steps
The initial OpenTeleRehab launch will be piloted in two provinces of Vietnam, serving 550 direct patients and their families. Tablets will be distributed to families if they are unable to access a mobile device. After its initial release, Humanity & Inclusion plans to further develop its services and eventually expand its use.
“The next steps will be to increase the number of exercises in the library, and to translate it to different languages,” Jacobs explains. “We will then be able to deploy the software in different countries and different contexts.”
More than 100 people were killed when a fuel tanker hit a large truck and exploded on Nov. 5 in Freetown’s Wellington district. Humanity & Inclusion staff in Sierra Leone are working to assist the community.
Humanity & Inclusion teams responded to the affected area, checking on people injured in the explosion, and their needs. Many people will require medical and rehabilitation care.
“It’s important to treat the injured, particularly serious burns victims, by providing them with rehabilitation care,” says Pauline Ducos, Humanity & Inclusion’s director in Sierra Leone. “If casualties are not treated after they leave the hospital, they risk losing their functional abilities and may develop a disability.”
Humanity & Inclusion’s teams also plan to help survivors and their relatives with psychosocial support.
“Our current priority is to give casualties psychosocial assistance in order to prevent extensive psychological damage,” explains Mamoud Kargbo, Humanity & Inclusion’s operations manager in Freetown.
A ‘national disaster’
Declared a “national disaster” by the Vice President of Sierra Leone, the explosion occurred when a fuel tanker collided with a large truck carrying granite. Most of the casualties are street vendors and motorcyclists who were attempting to recover fuel from the tanker when it exploded.
A total of 101 people died and 200 more were injured. Half of the people with injuries are unlikely to survive, according to the latest reports.
All casualties are being treated in the city’s hospitals and clinics, which have been overwhelmed by the sudden influx of patients. The facilities do not have staff with expertise on caring for serious burns victims.
Humanity & Inclusion in Sierra Leone
Humanity & Inclusion began working in Sierra Leone in 1996, when it opened a rehabilitation center in Bo, followed by three other centers. Since then, Humanity & Inclusion has worked alongside the medical community to improve the standard of rehabilitation care. Teams also promote inclusive education, protection and mental health.
Humanity & Inclusion has responded to major health emergencies in the country, including the Ebola epidemic from 2013 to 2015, the mudslide in 2017, and the ongoing Covid-19 pandemic.
Over the last 25 years, Humanity & Inclusion has served tens of thousands of individuals, including people with disabilities, children and women to alleviate poverty and improve access to essential services.
Humanity & Inclusion’s emergency staff has been actively responding since a 7.2-magnitude earthquake hit Haiti two months ago. Teams have already provided 1,200 rehabilitation sessions to injured people and delivered more than 150 tons of humanitarian supplies.Read more
To mark World Cerebral Palsy Day on October 6, Humanity & Inclusion highlights the importance of providing care and treatment to children born with this life-long condition.
Cerebral palsy is the most common motor disorder encountered by rehabilitation teams in the countries where Humanity & Inclusion works. Assisting children with cerebral palsy is therefore a major priority for the organization.
Seventeen million people worldwide live with cerebral palsy. It is the most common cause of motor disorder in children. Globally, people with cerebral palsy are still subject to discrimination.
Cerebral palsy is a group of lifelong conditions that affect movement and coordination. It's caused by a problem with the brain that develops before, during or soon after birth. It is sometimes associated with severe cognitive and sensory difficulties. It can also make it challenging to communicate with a child, to calm them and take care of them, which sometimes leads to rejection.
However, depending on the severity, if cerebral palsy is detected early, the parents are provided with information and the child receives immediate rehabilitation care, the likelihood of further complications can be reduced. The correct treatment can quickly transform the life of both the child and their family, and increase their chances of being able to walk, go to school, work and live a fulfilling life.
Humanity & Inclusion takes an intersectional approach to healthcare and physical and functional rehabilitation, while working as closely as possible with the family in order to provide them with the best possible care and treatment.
First step: early detection
Children born with cerebral palsy in the low- and middle-income countries where Humanity & inclusion works are often at-risk of discrimination and exclusion.
“Cerebral palsy is caused by an accident during pregnancy or during or just after birth. Symptoms depend on which part of the brain is affected, and they change over time. If a baby does not receive treatment, they will develop problems with muscle tone and will not be able to coordinate their movements. The faster it is correctly treated, the less brain damage the child will experience,” explains Uta Prehl, Humanity & Inclusion’s West Africa rehabilitation specialist.
“Unfortunately, in the countries where we work, care staff are often not trained to detect this condition early on,” Prehl continues. “Midwives need to know how to test the reflexes of newborns, for example. These tests need to be done every three months to check if the child is affected. This is why Humanity & Inclusion trains medical staff in the early detection of the cerebral palsy whenever possible. Care staff need to make a diagnosis and parents should be provided with information and guidance on visiting a health center with their baby without delay.”
Raising awareness of parents
Many families never visit a health or rehabilitation center or go when it’s too late. Sometimes parents are unable to take leave from work or to pay for transportation to health centers. Others feel ashamed and frightened their children will be seen as different. In some countries, children with cerebral palsy are hidden away or ostracized.
Humanity & Inclusion runs family education activities to raise the awareness of parents and their communities to help people learn more about cerebral palsy and the possibilities that treatment can open up for a young child. Parents also learn about the significant role they play in helping their child at health centers and in their future care.
Rehabilitation is essential
Most of a child’s early learning and brain development happens before the age of 5. Early detection of cerebral palsy is essential to providing an immediate rehabilitation response, in addition to mobility aids and other supports. These are included in the services provided to children with cerebral palsy by Humanity & Inclusion’s rehabilitation teams or its partners. Mobility aids and other supports must be personalized, and children need to learn how to use them with help from their parents.
“With our partners, we work in direct and close contact with families, often the mothers, to ensure rehabilitation care produces the right results,” Prehl explains. “We need to provide equipment or devices adapted to the child, like mobility aids, and adapted chairs and tables, which are made to measure to give the child proper posture support.
“We make the diagnosis and decide on treatment and orthopedic fitting using the international Global Motor Function Classification Scale, which means we can work in a way adapted to each child, based on a precise evaluation. The next step—exercises to learn how to use posture and mobility aids—depends a lot on the relationship between the mother and child, and how motivated they are.”
Many people with cerebral palsy live long and fulfilling lives with support from Humanity & Inclusion and other organizations around the world. But too many people are still left behind. Humanity & Inclusion will continue its efforts to ensure young children with cerebral palsy are able to access the immediate care they need and to increase their chances of enjoying the same rights and opportunities as everyone else.
Thanks to an innovative 3D-printing project, 5-year-old Kennedy can walk on his own and play with other children for the first time.
Displaced by fighting in South Sudan, Kennedy’s family arrived in Uganda in December 2016, when he was just 9 months old. Now, he lives with his mother and two siblings in the Arua district.
Kennedy has Cerebral Palsy. And though he can eat, drink and hear easily, he is unable to speak. He also has limited dexterity and finds it difficult to hold objects.
“My wonderful, brilliant, cheerful little boy has had from Cerebral Palsy since birth,” says his mother. “Two days after he was born, he had a high fever; I took him to hospital in South Sudan where they diagnosed him with severe malaria. The doctors treated him straightaway, but it left him with consequences that have affected his mobility and communication skills: he can’t switch sides when he is lying down and he can’t sit, kneel or stand. He couldn’t walk without a walking frame. He depends on adults to do almost everything other children take for granted, including dressing himself or going to the bathroom.”
Kennedy began physical therapy with Humanity & Inclusion’s specialists in February 2020, after meeting with community volunteers. Despite challenges, Kennedy is growing stronger with each rehabilitation session. He’s already learned to stand and move around with the support of a walker.
In November 2020, Kennedy was enrolled in Humanity & Inclusion’s 3D PETRA project—an initiative that equips people with custom, 3D-printed braces and artificial limbs. After a consultation with a technician, Kennedy was prescribed braces for his feet. The team scanned his lower limbs, then printed braces to fit him perfectly.
As Kennedy continues his physical therapy exercises, he’ll soon be able to walk on his own with his braces. His mother is extremely grateful and delighted her son can finally play with other children in their neighborhood. Next, he’ll conquer school for the first time!
As emergency teams respond to the recent earthquake in the southwest, Humanity & Inclusion continues to help Haitians face the Covid-19 pandemic.
Humanity & Inclusion and its local partners— Pain Without Borders, Together For A Better Future In Haiti, National Association Network for the Integration of People with Disabilities and Haiti Rehabilitation Foundation—reached more than 10,000 people as part of its “Tackling Covid-19” project which ran from August 2020 through June 2021. With funding from the Belgian Development Cooperation, Humanity & Inclusion is continuing its Covid-19 response in north and northeast Haiti throughout 2021.
During the 10-month project, hygiene kits containing soap, buckets with taps for hand-washing, hand sanitizer and other items were distributed to 1,400 families. Teams also shared information protection measures to prevent the virus from spreading.
Families also received a $150 cash transfer to spend as needed to afford food, medical care or other necessities.
Through the project, more than 3,500 people received rehabilitation care. Among them, 286 patients participated in respiratory therapy, a form of physical therapy that frees up the respiratory passages, strengthens breathing muscles and improves ventilation to better move oxygen through the body. Humanity & Inclusion and its partners trained 40 rehabilitation professionals in respiratory therapy to treat patients with future respiratory infections.
Mental health support
Since the beginning of the pandemic, mental health has been a major challenge. Confinement and inactivity during the lockdown, for example, have increased anxiety and distress of individuals and families who fear for their health and future.
Humanity & Inclusion and its partners provided communities and medical staff with information on mental health issues, a field that is underrepresented in Haiti. Some 2,000 patients and caregivers took part in awareness sessions and learned about the role of psychologists and psychiatrists, psychological distress, and psychological care management and its importance. Teams published informational videos in French on Creole on Facebook, reaching more than 120,000 people, and answered community questions ranging from “What is an emergency service?” to “What are the signs of psychological distress?”
More than 400 health professionals attended trainings to better meet the psychosocial needs of the community. The specialists learned how to listen attentively to patients without forcing them to speak, how to comfort them, and how to guide families to sources of information and refer them to the services and social support they need.
Teams offered psychological support to 270 patients and caregivers. An additional 130 patients participated in group therapy, enabling them to talk about their experiences. A helpline funded by the project offered emergency support and reassurance to 2,300 people in distress. When necessary, some participants were referred to a psychologist.
An estimated 800,000 people have been affected by an earthquake that hit Haiti mid-August. Women and girls with disabilities are among those most impacted. Humanity & Inclusion’s teams are on-site and coordinating with local actors to ensure that humanitarian aid takes their needs into account.
The population in Haiti has long been exposed to issues of poverty, made worse by frequent natural disasters in the country. Today, in addition to inflation of the local currency, Humanity & inclusion surveys of local markets found that the cost of basic goods has increased since the earthquake. A pack of women’s sanitary napkins was 75 Haitian gourdes before the earthquake, but now costs over 100. Even more challenging, many people are now without any income after the disaster.
“Many women with disabilities have lost their tools for their income-generating activities,” says Marijoe Pierre, President of the Haitian Association for Women with Disabilities in the South. “A disabled woman seamstress lost her sewing machine in the rubble. She is a single mother with three children. This machine allowed her to feed her three children. She now lives with them in a camp for displaced people along the road to Torbec.”
According to the UN, around 1,500 people with disabilities have been identified in the three most affected regions (Nippes, Grand’Anse, South), the majority of which are women. In the more than 500 emergency rehabilitation sessions carried out by Humanity & Inclusion’s team since August, 58% of patients have been women and girls.Read more
One month after a 7.2-magnitude earthquake affected 690,000 people in southwest Haiti, humanitarian needs in the country remain immense. The natural disaster wreaked havoc on the Grand’Anse, South and Nippes districts, causing over 2,200 deaths and putting 650,000 people in need of vital support.
“Day after day at the rehabilitation center, patients are multiplying,” says Guetchly-Nise, a physical therapist recruited by Humanity & Inclusion and its partner FONTEN in Les Cayes.