Senegal | Preparing the next generation of disability rights advocates
My name’s Fama Ka. I’m the mayor of Mbour in Senegal. I’ve had a visual impairment since I was 13. I’m now 54. I have a long track record in fighting for women’s rights, particularly the rights of women with disabilities.
I am a women’s representative for several women’s and disabled people’s organizations. I’ve been involved in campaigning since 1990. I’ve represented Senegalese and African women with visual impairments in Kenya, Canada, Burkina Faso, Japan and Thailand. I am vice-chair of the Senegalese Federation of Disabled People’s Organizations and general secretary of the National Committee of Women with Disabilities.
I am also the treasurer of the Pikine organization of persons with disabilities and member of the drop-in center run by the organization for women with disabilities, one of Humanity & Inclusion’s partners. I listen to a lot of abused women. They share their experiences, their problems and their needs with me. This drop-in center has made an enormous difference and I’m proud I helped set it up.
Women didn’t have anywhere they could go to talk about their feelings or to share their problems. This center is a place where they can open up to their peers and talk about the difficulties they face.
Our fight is everyone’s fight
I was proud of being a girl and I am proud of being a woman. But women in our country suffer all sorts of abuse: psychological, verbal, physical, and so on. Especially women like us, with disabilities. We suffer abuse both as women and as people with disabilities.
Women with disabilities in Senegal are highly committed. They join organizations and form alliances with other women. They’re improving their lives because they’re seizing the opportunity to talk about their problems.
Their fight is now everyone’s fight—the fight of all women.
Society needs to advance our rights. It must fight alongside people with disabilities. Just as it advances the rights of children, it must take action and advance the rights of people with disabilities. We need to promote local and inclusive development and involve people with disabilities in managing communities. Fortunately, things are changing, and more attention is being paid to the problems facing women with disabilities. For example, as part of a job creation scheme, I’m currently training 15 young women with visual impairments to run their own businesses.
Developing my community
The role of our partner, Humanity & Inclusion, is to support people with disabilities in their struggle and to supply their projects with technical and financial assistance. Humanity & Inclusion has worked alongside women with disabilities for many years, including by helping to advance their rights and promote their inclusion in society and the workplace, and by funding their projects. Humanity & Inclusion has done a lot for people with disabilities, and this is something we welcome and value.
Things have changed. Many women with disabilities now help run society. They have a voice on decision-making bodies and can influence the way people behave.
What also drives me is the fact that I, as a visually impaired woman, have a role to play in society. I even train people without disabilities now because they have confidence in people with disabilities.
I am proud to be not only a woman but a woman with disabilities. Because this has not prevented me from helping my sisters or from helping develop my local community and country.
Fighting to advance our rights
I want to appeal to my sisters to continue combating violence against women and to advance our rights. The goal is to build a society where no one is excluded, where everyone has the same opportunities and privileges.
I work with young women with disabilities to prepare the next generation of campaigners. I have been fighting for people with disabilities for three decades; it is time to pass on my knowledge and skills. These young women with disabilities will continue the work I started so many years ago.
Just as others helped me become who I am, I will pass on what I know to the younger generation, so they continue the fight.
In Senegal, Humanity & Inclusion works with partner associations, supporting them to increase their visibility and improve their impact on the reduction of gender-based violence, the empowerment of women and girls and gender equality. The Making it Work - Gender and Disability project, implemented in Senegal since March 2021, is working alongside women and girls with disabilities to support lasting change to fight gender-based violence against women and girls with disabilities. The aim is to support the efforts of women with disabilities who are leaders in the fight against gender-based violence and enable partner organizations to increase their impact.
Senegal | Building an inclusive society with a rights-based approach
My name’s Dieynaba Diallo. I’m 53, and I live in Senegal. I have a motor disability and I coordinate the Thiès branch of the pan-African Women in Law and Development in Africa organization, a partner of Humanity & Inclusion.
I have a disability because I caught polio when I was 7 years old. Back then, people with disabilities, especially little girls, were treated as objects of pity. My mother fought hard for me. She insisted I go to school. It had an enormous impact on my life.
I gained confidence at school. I always felt that I needed to do better than the others. When I challenged myself, it wasn’t as someone with disabilities. I measured myself against what children without disabilities were or weren’t capable of. Back then, people believed only boys could excel and succeed. To stand my ground, I competed with them for the best marks and to be top of the class.
I always felt I should use my position as a woman with disabilities differently. I wanted people to know I was more than my disability. I wanted to show them I had abilities despite my disability.
During my career, I worked in a human rights NGO, raising awareness on women's rights. I also worked at the African Network for Integrated Development, which provides legal and judicial support, and at a shelter for victims of violence. Training is my vocation. Some things resonate with me, and I always want to give my input. This means you have to be able and knowledgeable enough in different fields. It’s a challenge and I’m determined to rise to it. This is why I have seized every opportunity to educate myself throughout my life.
Systemic violence against women with disabilities
I’ve seen cases of physical violence, and some of it was dreadful. I recently helped a woman file a complaint against her father-in-law. Before beating her, he removed her artificial legs so she couldn’t move or escape. This is a good example of violence against women with disabilities: had she been able to use her legs, she could perhaps have run away.
Some women also suffer sexual or psychological abuse. Medical professionals also commit acts of violence against women with disabilities. These women have rights: the right to motherhood, for example, and the right to a consultation. They must be welcomed with respect and dignity by hospital staff. We had to raise their awareness and show them why they were part of this systemic abuse.
Women with disabilities must be able to exercise all their rights, especially their right to health and economic empowerment.
If someone abuses you but you are financially independent, you are protected to a certain extent. One woman with disabilities told her me her child was beaten at home, but she couldn’t do anything about it because she was frightened that she would be thrown out and she didn’t have anywhere else to go. Imagine what she had to go through because she couldn’t cope financially. This has to stop.
When I started working for a human rights NGO, I raised women’s awareness of their rights. Because I didn’t earn enough to make ends meet, I used to resell products I’d bought in Gambia. It wasn’t easy, the road was pretty bad, it could be dangerous, but it never crossed my mind to give up.
I felt I couldn’t allow myself to do it: as a woman with disabilities, if I gave up, they would have stopped me making something of my life. Financial empowerment really makes a difference to a person.
A rights-based approach
All we want from partner organizations like Humanity & Inclusion is to share the fight with us. To fight by our side against injustice and build an inclusive society that advocates a rights-based approach and makes it possible for everyone to live in dignity.
We need to adjust to reality and diversify our activities. What we really need now are sustainable businesses that create jobs and generate income. Businesses owned by women with disabilities. Women with disabilities have the ideas, the courage, and they think big—they just lack the means.
I joined all sorts of organizations early on, and this commitment really shaped who I am. My main priority is the rights of people with disabilities and women with disabilities—in Senegal, internationally and on decision-making bodies. Other women have other outlets to talk about their problems; these conversations are closed to women with disabilities. I want to help my sisters, talk with them and tell them that no one can fight this battle for us. We and only we can see it through. Together, we will win this fight.
I am driven by the challenges still ahead of us. We must meet them together.
One day, in a meeting, one of my sisters said to me: “I want to be Dieynaba Diallo.” I replied: I’m relieved to hear that! Because when people see me today, they don’t dare commit injustices. But others still suffer these injustices. This is why my mission is to make every woman with disabilities a Dieynaba Diallo—a woman who knows how to say no when she has to.
In Senegal, Humanity & Inclusion works with partner associations, supporting them to increase their visibility and improve their impact on the reduction of gender-based violence, the empowerment of women and girls and gender equality. The Making it Work - Gender and Disability project, implemented in Senegal since March 2021, is working alongside women and girls with disabilities to support lasting change to fight gender-based violence against women and girls with disabilities. The aim is to support the efforts of women with disabilities who are leaders in the fight against gender-based violence and enable partner organizations to increase their impact.
Peru | Accessible information can save lives during emergency
People with disabilities, older people and indigenous communities are often excluded from disaster risk reduction strategies on preventing and responding to emergencies such as earthquakes and tsunamis. But by making some small adjustments—like adding subtitles or using contrasting colors on signage and informational materials—we can ensure no one is left behind when disaster strikes.
Kipu Llaxta, an organization in Peru that works to advance the inclusion of people with disabilities, is working with Humanity & Inclusion to improve a national disaster risk reduction campaign. Among the simple measures it recommends are:
- Include the organizations run by and for people with disabilities and their representatives in disseminating information through their networks
- Translate awareness-raising videos into sign language and add subtitles
- Increase the size of text on posters and fliers
- Use contrasting colors to enhance the legibility of information
- Use multiple formats: visual, audio, text and illustrations
- Disseminate communication campaigns on national media to reach the whole population
As a result of these recommendations, families and people with disabilities were noticeably more likely to take part in disaster risk reduction actions.
Bringing about lasting change
Psychologist Giovanna Osorio Romero, the chair and co-founder of Kipu Llaxta, has a physical disability caused by a rare disease.
“Kipu Llaxta decided to address the issue of disaster risk management in Peru to make it more inclusive," she explains. "With support from Humanity & Inclusion, we have trained ourselves in risk management and gained expertise."
"By making simple adjustments, Peru's 2021 communication campaign was much more accessible, and people were better able to understand prevention messages," Romero adds. "This proves that inclusion benefits society as a whole and not just a small group of people. We are working hard to bring about lasting change and to challenge stereotypes.”
Prevention measures and disaster response must take into account the specific needs of populations disproportionately affected by emergencies: people with disabilities, aging people, women, children. Humanity & Inclusion supports organizations run by and for people with disabilities—like Kipu Llaxta—to uplift their voices and ensure inclusive humanitarian action. The organization will draw attention to this commitment at the 2022 Global Disability Summit in February.
Peru | Challenging stereotypes to build a more inclusive society
For more than 30 years, Giovanna Osorio Romero has worked tirelessly to build a more inclusive society and change how people see disability in Peru. Below, she shares insight about her work and her organization's partnership with Humanity & Inclusion:
My name is Giovanna Osorio Romero. I am 41 years old, and I’m a psychologist. I have a physical disability caused by a rare disease. I have campaigned for a more inclusive society for over 30 years. My parents always knew they had to help me become a strong person who could defend herself and make her own decisions. But as soon as I left the house, there were obstacles in my path. Even as a young girl, I realized that, as someone with disabilities, people look at you in a different way.
I became a psychologist because I realized society needs health professionals who are trained in inclusion. Health professionals often take a discriminatory view of people with disabilities, and I want to change that. When a parent of a child with disabilities sees a doctor, the doctor makes a list of what their child cannot do because of their disability rather than recognize what they can do.
We need to teach children with disabilities not to define themselves by how society sees them and help them recognize and remove obstacles, and become self-reliant.
Everyday inclusion
This desire for change was the driving force behind the founding of Kipu Llaxta in 2016. This non-profit organization, of which I am the chair and cofounder, works to advance the inclusion and development of people with disabilities.
Inclusion is something you experience and apply every day. It’s less about one-off actions than achieving lasting change.
Before people adopt an inclusive approach, they need to understand that inclusion is not confined to a small group of people: it allows us all to live together in a meaningful way. How many of us use an elevator, for example? We all benefit from measures to improve access.
Inclusive risk reduction
In 2018, when we were asked to be part of an inclusive disaster risk management subgroup in Peru, many disabled people’s organizations questioned its importance and didn’t see it as a priority.
This is because they didn’t understand the challenge, and this made us vulnerable. This is why Kipu Llaxta decided to address the issue. With support from Humanity & Inclusion, we have trained ourselves in risk management and gained expertise.
The working group is composed of private and public bodies who meet to discuss ways to make risk management more inclusive through public policies, posters, communication campaigns and appropriate evacuation plans. It is especially important to use visual, audio, text and illustrated messages to get information across. Inclusion is not just about taking into account people with disabilities; it should also include other groups, like older people or indigenous communities.
Challenging stereotypes
As a result of our work, inclusion and diversity challenges have been incorporated into training courses for community safety officers. These officers are volunteers who work to prevent risks and assist disaster-affected communities. They identify evacuation routes, map at-risk areas and so on. The new intake of community safety officers includes women, men, young people, older people and me—the first community safety officer with a disability in Peru.
People used to think that safety officers needed a certain build. They thought older people, young people and people with disabilities were incapable of doing the job. But the most active safety officer today is a 76-year-old woman who says this role has given her life new meaning.
Our new intake of inclusive safety officers is challenging stereotypes.
Our work with HI
It is not always easy for people with disabilities in Peru to be part of the decision-making process. We’re often simply asked to support decisions that have been made already. Some bodies are prejudiced and want to teach us things we already know, because they assume we are not aware of them.
In contrast, Humanity & Inclusion knows all about teamwork. It is an organization that listens and makes the most of the expertise of people with disabilities and the contribution they make. What I like most is our horizontal collaboration with Humanity & Inclusion. This collaboration allows us to learn and teach at the same time.
Building a sustainable society
My goal is to build a society where we no longer need bodies or organizations like Kipu Llaxta. For us, it is crucial to look at the big picture: when you give someone a wheelchair, you help them, but it’s a one-off action; when you change rules and laws, you help them and the people who come after them.
It’s about making sustainable improvements, not providing one-off benefits. We don’t live forever, and our work must continue to have an impact when we’re no longer there.
Read more about Humanity & Inclusion's partnership with Kipu Llaxta and inclusive disaster risk reduction efforts.
Global Disability Summit | Ensure disability inclusion is not just a tick mark
One billion persons have a disability worldwide, but meaningful inclusion remains a challenge.
In this Q&A, Ruby Holmes, an inclusive governance global specialist for Humanity & Inclusion, expands on the organization’s commitments ahead of the Global Disability Summit, which will be held virtually Feb. 15-17.
What is the Global Disability Summit?
The Global Disability Summit (GDS) is the second summit of its kind. The first one brought stakeholders from different governments, civil society organizations, the UN and organizations of persons with disabilities (OPDs) together in 2018, to discuss disability inclusion and inclusive development.
Disability inclusion is a key topic: about 1 billion persons, that is 15% of the global population, have a disability – and this is only an estimate due to lacking global disability data. Persons with disabilities are the largest minority group in the world.
Because of a lack of awareness amongst governments and service providers, persons with disabilities face many barriers, such as accessibility factors. However, one of the main barriers is attitudinal, as they face a lot of stigma and discrimination. One of the major challenges today is awareness raising, to show that persons with disabilities have equal rights and must have access to services just like everybody else.
Why is the GDS a key moment for inclusion and disability rights?
The GDS is important because of the momentum that the disability rights movement is gaining globally. We really want to keep those conversations, those partnerships going. It is also extremely important to hold stakeholders accountable to implement their commitments and ensure they are including persons with disabilities and OPDs in all of their programs, policies and initiatives.
A report by the Stakeholder Group of Persons with Disabilities found that between 2014 and 2018, less than 2% of international aid was disability relevant. So international stakeholders must really continue to support funding, providing more direct support to OPDs and pay them for their expertise.
What are HI’s commitments for the GDS?
Inclusive health, inclusive education and inclusive humanitarian action are part of the topics and themes that were produced by the Summit Secretariat. They are also pillars to Humanity & Inclusion's work and interventions.
Inclusive education
In inclusive education, Humanity & Inclusion commits to working with local education actors to train teachers to include students with disabilities. The work will include a focus on supporting children and young people with a range of diverse and complex needs, such as intellectual disabilities, communication impairments and psychosocial disabilities. Humanity & Inclusion commits to developing a guidebook and toolkits within the next two years, to developing research on the itinerant teacher and support mechanism model, and to applying these innovations in at least five new flagship projects over the next two years. Amongst other actions, Humanity & Inclusion also commits to advocating for financing efforts, to strengthen inclusive education systems and increase investments, in international platforms and networks.
Inclusive health
For the health sector, Humanity & Inclusion is focusing on sexual and reproductive health and rights (SRHR). Among other items, the organization is committing to develop at least four new inclusive SRHR projects over the next four years, through meaningful participation of organizations of persons with disabilities. In addition, through continued and renewed advocacy with key partners, Humanity & Inclusion commits to influence at least four policies, strategic planning or budgeting processes in the U.S., Canada, United Kingdom and European Union in the next 4 years.
Inclusive humanitarian assistance
Persons with disabilities are routinely ignored during disaster preparedness and often left behind when disaster strikes. More climate-induced disasters will increase the vulnerability of persons with disabilities. To fight against that, Humanity & Inclusion is committing to support persons with disabilities to meaningfully participate in humanitarian responses. By the end of 2025, the organization will develop, pilot and share two sets of tools for field professionals and three lessons learned from case studies.
Cross-cutting issues
Humanity & Inclusion has also created a commitment on meaningful engagement and sustained partnerships with OPDs across all of its projects. Throughout livelihood and education initiatives, Humanity & Inclusion will implement capacity building on advocacy and inclusive policies in five countries by the end of 2026. The organization has also made a commitment on acknowledging disability, gender and age as cross cutting components and critical vulnerability factors for populations affected by sudden onset or long-term crisis or poverty. Recognizing the diversity of the disability community, Humanity & Inclusion is committing to implement its disability, gender and age framework within all its projects by the end of 2023, to ensure that further marginalized groups, such as persons with psychosocial and intellectual disabilities, receive equal opportunities and representation in all initiatives.
The meaningful participation and inclusion of persons with disabilities is also key in many other topics, such as climate action and disaster risk reduction. Humanity & Inclusion attended COP—a global climate change summit—in Glasgow in 2021 and disability inclusion was not at all on people’s radar.
What outcomes is HI expecting of the GDS?
We need to increase the scale and ensure that disability inclusion is meaningful, not just a tick mark. Humanity & Inclusion is definitely advocating for more funding on inclusion projects. The organization also wants stakeholders to be intentional about disability inclusion from the very beginning and include OPDs in the design of their projects.
Humanity & Inclusion is expecting more dedication from States, UN entities and donors to support inclusive actions. Commitments are not legally binding agreements and there was a lack of response from some stakeholders at the last summit. For this summit, there has to be more pressure, more follow-up. Commitments have to be much more time-bound and practical, so that they are more likely to be achieved.
What added value can HI bring?
The GDS is very aligned to Humanity & Inclusion’s work and mission. For 40 years, Humanity & Inclusion has worked alongside persons with disabilities and populations living in situations of extreme hardship, in order to respond to their essential needs, improve their living conditions, promote and respect their dignity and fundamental rights. Humanity & Inclusion is also unique in that it is working in situations of poverty and exclusion, but also conflicts and disasters. The organization’s actions encompass the thematic pillars of the summit, focusing on more development context through education and health but also working in many situations focused on humanitarian action.
Furthermore, through its disability, gender and age policy, Humanity & Inclusion is taking more of an intersectional approach to inclusion. This approach is gaining a lot of traction globally: it is an important time and momentum to look at the various identities of a person and the role they play in their everyday lives.
Why is it important to support OPDs?
Obviously, we have to stay true to the disability rights motto: nothing about us without us. How could we work on disability rights without including persons with disabilities? They are the experts of their own needs, the barriers they face and accessibility. They must play a central role in ensuring that their human rights are translated into concrete measures that improve their lives.
OPDs are a way for persons with disabilities to come together and have a united voice. That uniform voice and collective movement has really played a huge role in the traction that the disability movement has had globally.
Humanity & Inclusion has historically always partnered with local organizations, to promote their meaningful participation, equal access to opportunities and resources as well as accessibility of the environment.
For instance, Humanity & Inclusion’s teams are working in Iraq with the Iraqi Alliance of Disability (IADO). In 2019, Humanity & Inclusion supported IADO in a joint publication on a shadow report on the Convention on the Rights of Persons with Disabilities (CRPD), which helped the UN committee learn more of a civil society perspective. It led to 69 recommendations to the Iraqi government, which actually encouraged the Prime Minister to sign a decree to reserve a certain percentage of jobs for persons with disabilities.
What is HI doing to support OPDs?
Humanity & Inclusion has been supporting the implementation of the CRPD in 59 countries and currently has about 35 country projects across 25 countries, where it is working with OPDs. Humanity & Inclusion is supporting OPDs through small grants, capacity building (workshops and trainings on creating an advocacy action plan, for instance), partnership building and elevated advocacy efforts, from the local to the regional, national and international levels.
Humanity & Inclusion’s main goal is to work at the local, very grassroots level, and then support those efforts to reach the national and international level, to create networks and spark constructive dialogues. For instance, Humanity & Inclusion has a regional capacity-building program in 15 countries in West Africa. The lead OPD partner is the Western Association of the Federation of Persons with Disabilities, who is in turn supporting smaller federations of OPDs.
In most contexts, Humanity & Inclusion does not need to play the advocacy role, as the organization is only acting as a support and not replacing OPDs.
Ruby Holmes is an inclusive governance global specialist. She has been working at HI for over 3 years and represents the organization in a number of international consortiums. She is working alongside HI teams to help them support civil society and organizations of persons with disabilities, through training materials, capacity-building workshops, advocacy events, etc. She is making sure HI is partnering with local organizations and that they're being engaged in a very meaningful way.
Disability Rights | HI calls for more inclusion ahead of 2022 Global Disability Summit
The Global Disability Summit will be held virtually Feb. 15-17, 2022, to advance the rights of people with disabilities. Humanity & Inclusion is calling on States to commit to a more inclusive world.
Drawing on its experience in the field, in collaboration with organizations of persons with disabilities, Humanity & Inclusion will work to achieve progress on three core issues at the summit: inclusive education, inclusive health and inclusive humanitarian assistance. The organization is formally calling on States to attend and take the necessary steps toward a more inclusive future.
A call to action
The 2022 Global Disability Summit is critical to advancing the rights of people with disabilities and helping ensure they live with dignity. In the wake of the first summit in 2018, 171 international actors committed to advancing the inclusion of people with disabilities in all areas of society.
This issue will remain central to the 2022 summit. It is vitally important for States, international agencies, funding bodies and civil society organizations to attend the gathering in large numbers and make commitments that are both ambitious and practical.
Humanity & Inclusion is launching an urgent appeal to all international actors to seize this opportunity and attend the summit. The commitments made must address core inclusion issues in collaboration with organizations run by and for people with disabilities, and be supported by funding to ensure they are implemented in full.
Three core commitments
Humanity & Inclusion is committed to making progress on three key disability rights issues at the 2022 Global Disability Summit. The organization also advocates taking into account the intersections of gender and age with disability rights.
Inclusive education
More than 32 million children with disabilities worldwide are deprived of an education—which means one-third of all children are not enrolled in school, according to a 2016 report published by the Education Commission. Humanity & Inclusion operates 48 education projects in 26 countries, collaborating with local partners to ensure the specific needs of all children, including those with disabilities, are taken into account. In 2020, Humanity & Inclusion helped 365,000 children go to school.
Humanity & Inclusion will urge national and international actors to commit to promoting access to school for girls, making education systems more inclusive and increasing funding for inclusive education policies.
Inclusive health
Humanity & Inclusion advocates the implementation of Article 25 of the Convention on the Rights of Persons with Disabilities, which recognizes their right to the enjoyment of the highest attainable standard of health. The organization works to implement inclusive health policies, train health staff and ensure equal access to care. To achieve this, Humanity & Inclusion works alongside with people with disabilities and their organizations to uplift their voices and support their involvement in decision-making.
The organization is committed to working alongside people with disabilities and the organizations that represent them, with an emphasis on women and young people with disabilities. Humanity & Inclusion works to facilitate access to quality information and services in the field of sexual and reproductive health and to advance rights in these areas.
Inclusive humanitarian assistance
Humanity & Inclusion helps international humanitarian actors—NGOs, funding bodies and international agencies—across 20 countries to develop a more inclusive approach. To achieve this, Humanity & Inclusion works alongside organizations run by and for people with disabilities to implement humanitarian projects and programs—such as interventions related to natural disasters—that take into account the specific needs of people with disabilities. The organization works with the Global Protection Cluster—a network of NGOs and international organizations engaged in protection work in humanitarian crises—and its partners to facilitate inclusive action through a global approach that includes age, gender and disability in adopted strategies.
Humanity & Inclusion is committed to helping implement the guidelines issued by the Inter-Agency Standing Committee, an inter-agency forum of UN and non-UN humanitarian partners founded to strengthen humanitarian assistance, including by giving people with disabilities and their representative organizations a voice and a role in humanitarian action. The organization plans to undertake promotion actions, gather good practices, and share tools and data on inclusive action while empowering international actors on this issue.
Humanity & Inclusion’s expertise
For more than 40 years, Humanity & Inclusion has worked to advance the rights of people with disabilities and to help them live with dignity. Across nearly 60 countries, the organization helps people with disabilities and their representative organizations participate in public debates to meaningfully shape strategies designed to meet their specific needs.
Drawing on its experience and expertise built up over many years, Humanity & Inclusion is committed to advancing the rights of people with disabilities at the 2022 Global Disability Summit. A delegation from Humanity & Inclusion will attend the summit, which will be held virtually.
Philippines | Inclusive employment for young people with disabilities
Through a project called Forward Together, Humanity & Inclusion is addressing a challenge that young people with disabilities face every day: unemployment.
Forward Together is an inclusive employment and livelihood project led by Humanity & Inclusion in the Philippines and Indonesia. Throughout a successful three-year pilot phase, teams learned how to become more efficient, while supporting 380 young people with disabilities and more than 50 companies to be more inclusive of workers with disabilities. The project is now being relaunched in the Philippines and Indonesia, and will later arrive in Vietnam.
The project empowers people between the ages of 18 and 45 with disabilities, by increasing their access to decent employment.
The approach is two-fold: Forward Together engages companies who want to hire youth with disabilities, then supports young people with disabilities in accessing jobs. This is done through personalized coaching to ensure prospective workers develop the skills needed to enter the workforce or start their own business. Humanity & Inclusion teams also provide technical assistance to employers to prepare them to recruit, retain and provide professional development opportunities for employees with disabilities.
Fighting systemic exclusion
The systemic exclusion of persons with disabilities, especially in the workplace, is one of the forms of social prejudice that youth with disabilities experience regularly. This situation worsened during the Covid-19 period during which young people with disabilities became more marginalized than ever.
In the Philippines, for example, even with a formal degree, a person who is blind will generally not have access to training or a profession that matches their skill level. In fact, the only common profession available to people with visual disabilities is massage therapy.
‘Young people often have skills and commitment that could get them a good job or position,” says Twyla David, Humanity & Inclusion’s Forward Together coordinator, who helped launch the project in 2018. “At HI, we're working to ensure that they can access decent, productive employment."
Centering skills and passions
Young people participating in Forward Together can choose between self-employment or being hired by an employer. Humanity & Inclusion provides personalized support, including assistance devices such as special screens or glasses, mobility aids, coaching sessions, as well as allowances to support them financially until they receive their first paycheck. Even after landing a job, Humanity & Inclusion conducts home visits, provides ongoing job coaching and organizes peer support groups for project participants.
“They have to be of working age with basic literacy, a satisfactory level of autonomy and ability, and with adequate support from their families,” David explains. “We use the personalized social support approach; we try to bring their skills and passions to the forefront. We want to help them to work where they feel safe, productive and valued.”
She shares the story of Kyenna (pictured), a 26-year-old who is an advocate for the Deaf community.
“Kyenna has a hearing disability and communicates through sign language,” David says. “She specializes in video editing, special effects, digital illustration and layout. HI has been supporting Kyenna in the pursuit of her professional goals through coaching, training, and job preparation such as mock interviews.”
Now, Kyenna is pursuing a career in visual graphic design in Manila.
A community effort
While each participant is at the heart of the project, stakeholders are also important. Humanity & Inclusion works together with a pool of young jobseekers, companies of all sizes, public employment offices, technical schools and professional institutions.
David explains that the goal of the project is for the job market to become “disability-Inclusive, sustainable, and community-based.”
Humanity & Inclusion works alongside companies to strengthen their capacity to hire people with disabilities and protect their rights in the work place. Teams provide businesses with technical support and training sessions on disability awareness, inclusive hiring and talent acquisition. The project also supports companies in drafting inclusive business continuity plans and inclusive disaster risk management for their offices.
“It does not matter to us if the company has experience hiring persons with disabilities or not,” David says. “The most important is their readiness to do so. We help them with the most difficult step in achieving inclusive employment: getting started.”
Philippines | Inclusive disaster risk reduction at work
In the Philippines, frequent natural disasters have serious consequences for people with disabilities. Humanity & Inclusion works closely with affected communities to ensure inclusive disaster preparation.
Located in the North Pacific typhoon belt and the Pacific Ring of Fire, the country experiences frequent cyclones, volcanic activity and earthquakes, putting its more than 100,000,000 residents at risk.
“Persons with disabilities are invisible during crisis events in the Philippines, whether caused by cyclones, earthquakes, volcanic eruptions or COVID-19,” explains Carissa Galla, Humanity & Inclusion’s Disaster Risk Reduction Technical Specialist for the region. “How many people with disabilities are affected? How many can access humanitarian assistance? How many receive warning information and can evacuate safely? This information is rarely collected, so the needs are not considered. We need to work with persons with disabilities and their organizations to ensure that no one is invisible during emergencies.”
In the event of disaster, people with disabilities are up to four times more likely to lose their lives than those without disabilities. They are often left out of disaster preparedness planning, resulting in accessibility barriers and a lack of adapted emergency resources.
Humanity & Inclusion operates inclusive Disaster Risk Reduction (DRR) projects in 15 countries, including the Philippines: one of the most disaster-prone countries in the world.
Empowering local leaders
In the Philippines, Humanity & Inclusion teams are working to reduce the vulnerability of 32 barangays—small administrative districts—devastated by Typhoon Ompong in 2018, and to prepare for disaster risks by enhancing the meaningful, inclusive participation of civil societies in disaster and climate risk governance.
Project EMPOWER, funded by the European Union and operated by Humanity & Inclusion in partnership with the Adventist Development and Relief Agency, aims to:
- Develop preparedness plans in 3,000 households
- Distribute 26 inclusive early warning kits to communities including items such as megaphones, whistles, bells, and visual devices such as color-coded flags, communication cards, reflective vests, ponchos, LED flashlights, solar panels, headlamps, and transistor radios
- Remove barriers for aging people, people with disabilities, children and women in DRR actions
- Increase the number of women leaders and active members of disaster and climate risk governance structures by more than 500
- Increase community organization-led climate risk initiatives by 80%
- Improve municipality contingency plans and implement 26 climate risk help desks
- Conduct and create modules for inclusive DRR training for organizations and policymakers
- Host gender, age and disability sensitivity workshops and simulation exercises
- Collect data regarding gender, age, disability, risks and resources.
Uplifting voices of impacted people
“When Typhoon Ompong hit our municipality and killed 94 people, I realized the importance of citizens' participation in risk governance,” says Avelino Tomas, Regional President of the Organization of People with Disabilities. “Persons with disabilities are capable of taking control of their lives and safety. We must allow them to participate and contribute to disaster and climate risk governance."
Not only must we include their needs in disaster risk reduction efforts, we must ensure that people with disabilities are active contributors to the response. According to a UN 2013 survey, 50% of people with disabilities said they wished to participate in disaster risk reduction efforts, but only 17% were aware of any plans in their community.
Many authorities focus on what people with disabilities cannot do while ignoring their expertise and capability to lead initiatives. In the Philippines and elsewhere, misconceptions and barriers to participation give people the false impression that people with disabilities can only be passive recipients of assistance. Surveys revealed that many in the community perceived these individuals as “victims,” “fragile,” or “burdens” in a disaster scenario.
Carmela Penchon, Secretary of the Federation of Persons with Disabilities in Itogen shared that as a woman with a disability, she felt unable to actively contribute to climate governance policies. After attending a Humanity & Inclusion awareness session on disability, gender and age sensitivity, she has become an outspoken and active advocate, championing ways to protect her community and lead DRR and climate change management initiatives.
Global climate change conference
Humanity & Inclusion is attending COP26, the UN’s Climate Change Conference, in Glasgow, Scotland, to advocate for the inclusion of people with disabilities in disaster risk reduction and climate change governance around the world. Over a billion people are concerned by inclusive risk reduction planning and climate action, and it is no longer acceptable for policymakers to exclude people with disabilities from response efforts.
Emergencies | Disaster risk reduction is a growing humanitarian need
Driven by climate change, the frequency and intensity of disasters from natural hazards is steadily increasing. Research shows that populations already facing difficult circumstances and low-income countries suffer the greatest consequences.
The rate of natural disaster occurrence is five times higher than it was 50 years ago. Between 1970 and 2019, more than 91% of deaths from over 11,000 disasters occurred in lower income countries. Droughts, storms, floods, and heat waves claimed the most human lives among natural hazards, with storms causing the most damage and economic loss.
“In the Philippines we see increasing and intensifying typhoons, storms and flooding,” explains Jennifer M’Vouama, Humanity & Inclusion’s Disaster Risk Reduction and Climate Change Adaptation Policy Officer. “Cyclones are affecting new parts of Madagascar. In the Sahel, it’s longer episodes of drought, and floods and landslides in Latin America. Each context is different, but we are trying to have a better understanding of vulnerability. In many places, disasters from natural hazards mix with other factors like conflict or epidemics, so we need to consider how these events reinforce each other and increase vulnerability.”
People with disabilities at greater risk
During disasters, people with disabilities are at greater risk of mortality and difficulty, as they often face additional barriers. In the 2011 earthquake and tsunami in Japan, the death rate among people with disabilities was two to four times higher than people without disabilities. In a 2013 global survey, only 20% of people with disabilities reported being able to evacuate without difficultly, and another 71% reported having no preparation plan for emergencies. Aging people and people with disabilities are often left out of contingency plans. As a result, they are left behind when disaster strikes.
Disasters often result in injuries that can lead to future disabilities. The 2010 earthquake in Haiti caused more than 200,000 severe injuries or disabilities, and the 2021 earthquake wounded another 12,000. Disaster can also wipe out livestock, destroy crops, and prevent economic activity, causing loss of livelihood and food insecurity. As the rate of occurrences increases, this means that each disaster puts more people at higher risk for future events.
Disaster risk reduction at work
While disasters caused by natural hazards are increasing, improved early warning and contingency plans have reduced the number of related deaths. Humanity & Inclusion operates 15 countries worldwide and collaborates with international organizations and local authorities to promote inclusion in the evolving global efforts to reduce risk.
“As a disaster risk reduction agent, Humanity & Inclusion helps communities anticipate the most serious meteorological episodes,” says Julien Fouilland, Humanity & Inclusion’s Inclusive Disaster Risk Reduction Specialist. “Our first priority is to better prepare the more vulnerable populations for disaster by ensuring their meaningful participation and effective access during the planning stage.”
After initial risk assessments in each neighborhood, Humanity & Inclusion teams develop activities such as strengthening shelters and ensuring they are accessible, developing household emergency response plans, and developing tailored evacuation solutions for people with specific needs. Teams also work with farmers and local organizations to develop sustainable economic activities such as securing livestock and fishing boats, which are essential to many populations.
“Disasters do not affect everyone in the same way,” M’Vouama adds. “This depends on where we live, on our socio-economic background, our gender, our age, whether we have disabilities or not. It is essential that we take into account the differentiated impacts of disasters on people and consider the underlying factors that generate vulnerability.”
Emergencies | ‘Our objective is to minimize the impact of disasters’
With natural disasters on the rise, communities worldwide face increasing danger. Jennifer M’Vouama, Humanity & Inclusion’s Disaster Risk Reduction and Climate Change Adaptation Officer, explains the growing need for risk reduction and importance of inclusive emergency response:
Humanity & Inclusion's Disaster Risk Reduction (DRR) team works with communities and individuals, among them people with disabilities, to build their resilience to disaster risks such as floods, cyclones, droughts or earthquakes. Our overall objective is to minimize the impact that these disasters can have on their lives and livelihoods, and to promote coping mechanisms that support recovery. We help them identify and analyze the impacts that these disasters can have on their lives, their livelihoods, habitats and on their well-being. Then, we help them develop risk mitigation and emergency preparedness plans that will protect them against the worst impacts of disaster.
How DRR fits into HI’s mission
Humanity & Inclusion’s mandate is really to work alongside most at risk populations and groups, including people with disabilities, to respond to their essential needs and promote their rights in situations of poverty, conflict and disaster. People with disabilities are particularly vulnerable in the event of a disaster. For example, an older woman with reduced mobility will very concretely face difficulties to evacuate an area that may be subject to flooding, or an area that will be impacted by a cyclone or a hurricane. This person will need support and specific assistance to evacuate their home and reach a shelter in a secure location where humanitarian assistance will be provided. Too often, we see that people with disabilities are not sufficiently supported. They tend to be excluded from relief efforts, and as a result are left behind when a disaster occurs.
DRR in action
On the ground, our disaster risk reduction efforts are focused on key activities including risk prevention, risk mitigation, disaster preparedness and early action activities. To mitigate risks, we contribute to strengthening houses and community infrastructure to make them more resistant to shocks. We also conduct inclusive risk awareness activities within the community to ensure that all community members are appropriately informed. In terms of disaster preparedness, we develop contingency plans with the community to organize their resources. We help establish stocks with first aid materials and mobility aids to facilitate evacuations. We identify safe evacuation routes for the population and collective shelters, and ensure they are accessible. When a disaster strikes, we can support pre-emptive evacuation of people and their assets. Finally, we conduct simulation exercises to test everything and continuously improve our approaches.
The role of climate change
One of the most visible consequences of climate change is the increase in the frequency and intensity of extreme weather and climate events. Floods, heat waves, cyclones, all these elements are much more frequent, intense, and much more violent. For the populations that we accompany in the world that are already vulnerable to poverty and exclusion, this means increased vulnerabilities and additional difficulties to achieve sustainable development.
Bringing inclusion to the global response
Humanity & Inclusion works in partnership with several technical, financial and institutional partners within the framework of these activities. For instance, we very often assist NGO partners in their disaster risk reduction actions, by bringing our expertise in terms of inclusion and analysis of vulnerability to disasters. Humanity & Inclusion has a unique capacity to analyze the differentiated impacts that a disaster will have on an individual according to various factors such as disability, gender, age, ethnicity, etc. Not everyone experiences a disaster in the same way, so the responses must be adapted and take these differences into account.