It’s monsoon season in the Kutupalong refugee camp in southern Bangladesh. The ground is muddy and slippery. Seven-year-old Saiful steps cautiously along the path to school. “I’m afraid of falling with my artificial leg,” he says, surrounded by his school friends. Saiful and his family live in the Rohingya registered refugee camp in Kutupalong, Bangladesh. At age two, he lost his left leg due to a congenital malformation. With support from Humanity & Inclusion, he has been fitted with an artificial leg and can now walk and attend school.
“His right foot was deformed and turned inward,” his mother explains. “It got worse and became infected. They said it was osteomyelitis, inflammation of the bone marrow and bone. The doctors told us several times that it needed to be amputated. We just couldn’t imagine doing that.” Over the course of two years, Saiful visited hospitals in the region on more than ten occasions. Visit after visit, the advice was always the same: Saiful needed an amputation. His parents resisted and refused to authorize the operation. Saiful would keep his leg.
Saiful had to take antibiotics on a regular basis. Then one morning, he woke up and couldn’t move his legs or blink his eyes. He was rushed to Cox’s Bazar Hospital where he had his right leg amputated. “We were miserable and felt demoralized. Saiful did too. He became isolated, and didn’t want to go out for fear he would fall. And us, we were exhausted.”
In 2013, HI physical therapists met Saiful in the refugee camp. “He was shy and wasn’t moving around much,” explains Bayzed Hossain, HI’s disability officer in Bangladesh. “We’re working to ensure he attends rehabilitation sessions and does exercises to restore his flexibility and to firm up his limbs. We’ve also set up parallel bars close to his home so he can get regular exercise. And we’re training his parents to conduct physical therapy exercises between sessions. But most important of all, in 2015, at age six, Saiful got his first artificial leg and took his first steps.”
“We’d given up hope,” his father explains. “We thought Saiful would never walk again. His artificial leg changed everything. Our boy is now learning to walk and going to school. He made friends and he’s more confident now.”
It’s June 2016 and Saiful, 7, is writing on the blackboard. “Saiful is cheerful and fits in well,” his teacher explains. “He’s supported by a group of teachers who go around with him. We’ve made a few adjustments to make him more comfortable. HI trained us on how to include children with disabilities in the classroom as best as we can.”
Saiful also takes part in the sport and leisure activities organized by HI, which brings together more than 800 children with and without disabilities. “Khelain arto besi gom lage” – “I love to play!,” says Saiful.
Today, with support from Humanity & Inclusion, Saiful is more autonomous, better integrated, and attends school. His confidence has grown, but his situation is still complicated. “Saiful needs to improve his balance as he recently fell and burned himself,” Bayzed Hossain says. “He needs to firm up his limbs and become more flexible. And he’ll need a new artificial leg next year, as he continues to grow.”
Saiful returns home from school for the day. He’s getting ready to meet up with his friends to play marbles. Before he says goodbye, our team asks him what he’d like to do when he’s older. Saiful responds without missing a beat: “Ai dorwayrea asmane urium” – “When I grow up I’m going to fly!”
Sponsor a rehabilitation session for a child with a disability.
Nishan and Sonu are huddled together with their eyes glued to the screen of a mobile phone. They are chatting with their father in Qatar, where he works. The last time they saw him was a year ago. Their mother, Nira Rai, is next to them, working in the kitchen, which doubles as a bedroom. She washes the vegetables for dhal, a Nepalese lentil dish.
Nira Rai begins to share about the day her son’s life changed. “Nishan was five-years-old,” she explains. “He was coming home from school with his friends. On the road, they came across a truck. They were very excited. They rushed to the truck and clambered inside.
“That’s when Nishan fell out of the vehicle, but the truck was still moving. It was terrible. He was in so much pain he blacked out. I saw him the next day in the hospital and his leg was badly cut up. He was suffering a lot.”
For three days, the doctors did everything they could do to save his leg. But eventually, they decided he needed an amputation. "When Nishan realized he’d lost his left leg, he cried and cried. He was devastated. He asked me if he’d ever walk again. To reassure him, I promised he would. But I was far from sure.”
In 2012, Nira Rai met with a social worker from a Community Based Rehabilitation Center in Biratnagar, eastern Nepal, which is supported by Humanity & Inclusion. There, Nishan began his first rehabilitation session.
“We gave Nishan a prosthesis and helped him learn how to walk again,” explains Bharati Dev, a physical therapist with HI. “We also taught his family how to do the exercises with him at home. And as Nishan grew taller, we lengthened his prosthesis.
“In 2017, there were major floods across the whole district. The rehabilitation center was under water, and his prosthesis was damaged, so we had to stop his care. When we resumed our activities, in 2018, we gave Nishan a second prosthesis.
“Every three months, Nishan visits the center. He needs to be closely monitored because his prosthesis hurts him sometimes due to the poor condition of his stump. It can get infected very quickly,” Dev adds.
"Since he was fitted with his prosthesis, Nishan is more self-reliant,” his mother says with a smile. “After his accident, his friends laughed at him. He was depressed and withdrawn. Today, Nishan is very active. He plays a lot with his friends and his sister. And he loves badminton.”
Nishan, who is now 14, goes to the Himalaya Secondary School in Damak, five minutes from home. He likes learning English, doing crossword puzzles, and using the computer. He has a close circle of friends and helps his mother in the kitchen. His dream? “I want to go to China,” he says. “It’s a big country. I’ve heard a lot about it. And then, I would like to see my father again.”
Many thanks to the American people, through USAID, for supporting this project.
On April 25, 2015, the earth shook in Nepal, killing more than 8,000 people and injuring 22,000. Already present in the field, Humanity & Inclusion launched an immediate response in aid of those affected, providing assistance to more than 19,000 people.
"Following the earthquake, HI helped many victims with fractures or musculoskeletal pain and longer-term injuries such as amputations and spinal cord injuries,” explains Willy Bergogne, Humanity & Inclusion’s director in Nepal. “We formed new partnerships with government authorities to ensure access to rehabilitation care for people living in remote and hard-to-reach districts.
"Four years on and conditions are more stable for many patients, but we continue to provide rehabilitation care to those in need."
Since April 2015, our team has run more than 42,000 rehabilitation and psychological support sessions for more than 19,000 people and supplied 7,000 prostheses and orthotic devices to people with injuries. HI has also distributed more than 4,300 kits containing tents and cooking supplies to more than 2,200 families.
Transporting aid to remote villages
Humanity & Inclusion’s logistics team organized the storage and transport of more than 5,400 tons of humanitarian equipment to remote villages. In the Winter of 2015, our teams handed out warm clothes and blankets to more than 9,000 people.
Supporting the most vulnerable
More than 1,500 earthquake-affected households have been given financial support to set up new business activities such as goat breeding and small stores. Our organization also enabled the most vulnerable people to access additional humanitarian services, such as education and healthcare supplied by other organizations.
In addition, our teams raised the awareness of more than 3,000 people to ensure the most vulnerable individuals are taken account in natural disaster risk management. We want to ensure that no one is forgotten.
Humanity & Inclusion has a team of 80 people in Nepal. We support seven rehabilitation centers in the country, help earthquake casualties earn a living, and makes sure children with disabilities have access to school. Currently, HI is assisting victims of the recent March 2019 tornado.
Photo: Sudan Rimal, a physical therapist with HI, spends the day at a park in Nepal with earthquake survivors Nirmala and Khendo.
On March 31, a violent tornado struck the Bara and Parsa districts in southern Nepal, killing nearly 30 people and injuring more than 600 others. Officials estimate that more than 1,500 households were affected.
To support the victims of the storm, Humanity & Inclusion is distributing mobility devices–crutches, wheelchairs, and walkers–and providing rehabilitation care to those injured. These activities are in collaboration with our partner rehabilitation center, the National Disabled Fund and Nepal Physiotherapy Association (NEPTA).
"Our priority is to provide appropriate rehabilitation care to the injured in order to prevent them from developing a long-term disability and to enable them to regain their quality of life," explains Willy Bergogne, Humanity & Inclusion’s director in Nepal.
Humanity & Inclusion in Nepal
Humanity & Inclusion has been present in Nepal since 2000. Our team took immediate action to help victims of the earthquake that hit Nepal on April 25, 2015. We continue to deliver rehabilitation sessions and provide walking aids in the seven districts. In addition, our programs have diversified with additional focus on health and access to services such as inclusive livelihoods, inclusive education and community based disaster risk management. Learn more about the work we do in Nepal.
When a 7.8-magnitude earthquake struck Nepal on April 25, 2015, Ngima Sherpa followed the terrifying headlines from her home in Jackson Heights, New York. Alongside her sister and mother, she says she cried and prayed. But then, Ngima recalls, her nursing skills kicked in: “It wasn’t good to be sad. We had to do something.”
As an active member of the Nepalese American Nurses Association (NANA), she had a group of colleagues who were keen to help. They were also adamant that any money sent to Nepal would support professionals who were directly helping Nepalis with injuries—especially nurses.
The next day, Ngima grabbed a folding table, a little brown collection box, and posters calling for donations. She set up a stand on the sidewalk, along the path to her child’s school.
Her perspective on the New York spirit changed within moments. “Everyone came,” she says. “They were all ready to help Nepal: the Indians, the Pakistanis, white people, black people, senior citizens, students. It was overwhelming.”
By the third day, NANA had collected about $20,000, as well as enough medical supplies to fill an office. And on May 3, 2015, a handful of nurses traveled to Kathmandu to deliver relevant supplies directly to the professionals they knew they could trust: Nepalese nurses. “We went to every hospital, and left a bag of supplies,” she says. Additional supplies were used to stock two shelters in New York.
The only catch? The Association of about 300 nurses in the U.S. didn’t yet have a place in Nepal to donate the funds they’d raised. And before long, their fundraising results had almost doubled. So, in 2017, Ngima took her family to Nepal, where she set aside time to find a charity that she felt she could trust.
She began to find her match in western Nepal, when a Belgian physical therapist sat next to her on a bus. “He had worked with Humanity & Inclusion (then Handicap International) for years,” she says. “He told me there were a lot of people who needed prostheses.”
Back at her computer, she sent an email to Willy Bergogne, the director of Humanity & Inclusion’s Nepal program, and the wheels started turning. “I felt, ‘this is it,’” she says. “We won’t find a better project than this.”
So far, the generous grant to Humanity & Inclusion has benefited 34 people who lost limbs from the 2015 Nepal quake. These individuals had originally received rehabilitation and artificial limbs at the National Disabled Fund, a Kathmandu-based rehabilitation center set up by Humanity & Inclusion with support from USAID. Three years on from the earthquake, many people’s artificial limbs had worn down from so much use on Nepal’s uneven roads. HI’s younger beneficiaries simply grew, and were ready for replacements.
“We are thankful to NANA for their great support to reach out to almost all the Nepal quake impacted amputees,” says Willy Bergogne, the director of Humanity & Inclusion’s Nepal program. “We’ve been able to replace their prostheses at the right time, enabling the beneficiaries to walk confidently.”
“Ngima Sherpa and NANA are incredible for supporting the critical work of their fellow nurses in Nepal, and for considering the long-term needs of the people whose lives changed so drastically on April 25,” says Jeff Meer, U.S. executive director of Humanity & Inclusion. “By setting up that folding table in Jackson Heights, Ngima, her colleagues at NANA, and their generous neighbors will have helped dozens of people maintain their independence and mobility in Nepal. I cannot think of a better way for these committed professionals to promote, advocate and protect the health, safety and rights of the people of Nepal.”
Sunita Bhandari of NANA visits NDF, a Kathmandu-based rehabilitation center that is supported by Humanity & Inclusion in Nepal.
"When the water shook" is a series of short videos that follows 10-year-old Nirmala from Nepal. The series includes five short films that feature Nirmala's life: the earthquake, rehabilitation with Humanity & Inclusion, her life at school, and much more. Watch her videos and share her incredible story with your friends!
The earthquake which hit the country on April 25, 2015 killed more than 8,000 people and injured 22,000, including Nirmala. In this episode, she recalls the moment the earthquake struck Nepal and what it felt like to wake up with a missing leg.
Life with a disability
Immediately after losing her leg, Nirmala met Sudan Rimal, one of Humanity & Inclusion's physical therapists. He helped her regain strength through physical therapy and supported her as she took her first steps with her new prosthetic.
In Nepal, disability is primarily considered a social issue. It is rarely addressed as a public health issue or taken into account in education, health, and economic development. An estimated 78% of children with disabilities are excluded from school and only 1% of population of people with disabilities has access to decent, waged employment.
Why Nirmala loves school
Today, Nirmala is enrolled in a boarding school in Kathmandu, thanks to support from Humanity & Inclusion. She shares her room with Khendo, her best friend, who was also injured in the earthquake.
The inseparable duo
Although they lived miles apart, the earthquake brought Nirmala and Khendo together. On that dark day in April, both girls lost a leg after being buried under rubble. A helicopter airlifted Khendo to the hospital where doctors amputated her leg. Soon after, she met Nirmala in Kathmandu and they've been inseparable ever since.
During the holidays, Nirmala returns to her parents' home to visit. Her father works in a textile factory and her mother looks after children. Thanks to the rehabilitation care provided by Humanity & Inclusion, today, Nirmala stands tall.
Ensure children like Nirmala can stand tall after a disaster.
Paving the way for working women in Nepal
Kamala Tamata has made a life for herself, and now she is paying it forward.
When she was less than a year old, Kamala acquired polio, which severely damaged her left foot. Doctors suggested amputating, but her mother wouldn’t let them. Still, walking was extremely difficult for her, and as she grew, other children made fun of her. She and her parents thought her future was limited.
That all changed when she met a community disability worker with Humanity & Inclusion in the Kailali district in southwest Nepal. Thanks to a USAID grant and HI donors, Kamala received a brace for her foot and physical therapy to help her walk. She expressed an interest in being a tailor, so she participated in sewing classes and received support finding her first job.
Today, she works in a dress shop and teaches classes to other women, including some with disabilities. She is also a leader with the disabled persons’ organization in her community. Her monthly wage is enough to support herself and her family. She is even able to put some money away in a savings cooperative.
“The support I received has made all the difference,” she said. “Now that I can walk and work, I don’t feel like I have a disability.”
The Humanity & Inclusion team in Nepal provides support to people with disabilities so they can find meaningful, waged jobs. In addition, we work with employers so they can better understand disability and how to recruit and retain employees with disabilities by providing the tools they need to succeed.
When Dharma Devkota was five months old, she was burned so badly that both of her legs had to be amputated. At the time of her accident, she and her family were living in the western hilly district of Surkhet. After her injury, they moved to Kailali, a district in western Terai.
For years, Dharma was carried to school by her mother, and sometimes by her father. In rural Nepal, children generally start school when they are four or five-years-old. Dharma started when she was eight, and would sometimes miss class when her mother became busy with household chores or agricultural activities.
That is, until she met the Community Disability Worker (CDW) through USAID’s STRIDE project. HI’s partner organization visited Dharma at her home and explained the process of being fit for artificial legs. “I did not believe that my daughter could walk and be independent,” Ranga Devi, Dharma’s mother said. “And I never imagined that she could cycle.”
Today, at the age of 18, Dharma is strong and independent with support from her second set of artificial legs. “She is a girl with strong determination,” her mother adds. “She learned how to cycle in the period of a week.”
Dharma attends school regularly, and travels to and from by bike. Her two brothers help care for her and help her study for school exams. She reads at a 9th grade level and dreams of someday becoming a nurse. “Now I never have to miss my classes and I can go to school regularly,” she says. Her mother adds: “Since she has become regular at school, she has improved her position in class.”
Reema, 14, is dancing around gracefully, clearly in a happy place, surrounded by fifteen or so children. Everyone is watching her in admiration. “Reema used to live in a district of western Nepal, a long way from here," explains Uma, a woman who manages an orphanage in Kathmandu.
She was six years old when she arrived at the orphanage. Her father died when she was a little girl and her mother abandoned her. She had phocomelia, a congenital malformation, and her foot was attached to her knee so she couldn’t move around by herself. I used to carry her around Kathmandu. I can still remember the stares we used to get in the street: ‘She’s already a mother at her age?’ ‘That child is disabled.’ I think of Reema as my daughter,” she added.
Unable to walk for many years, Reema talked to a local journalist about her experiences when she was nine years old. The interview was published and someone showed it to HI, who arranged to meet her. The organization examined her left leg and decided she needed an immediate amputation. After surgery, our rehabilitation team immediately started working with Reema to strengthen her muscles and prepare her leg for a prosthetic.
Once her leg had completely healed and it was strong enough, our team fitted Reema with her first prosthetic leg. “That was the first time we saw Reema walking. Shortly after, she started to dance. It’s incredible,” says Uma.
Last month, Sudan Rimal, a physical therapist with Humanity & Inclusion visited Reema to examine her leg. “Her stump isn’t firm enough,” he explains. “Reema needs to do more exercises to strengthen her leg muscles. Soon, she’ll be back to the rehabilitation center so we can adjust her prosthesis.”
Thanks to the support she’s received from Humanity & Inclusion, Reema dances every morning before school. Her dream is to become a professional dancer. “I want to go back to the village where I was born, to see my mother, brothers, and sisters again. I think I must have a big family.” Uma adds: “I’ll take her there one day. I promised her.”
In Nepal, most primary school students are unable to read at grade level. The outlook is dire for Nepali children with disabilities, since Nepali children’s capacity and adaptability to learn are rarely screened.
Starting this month, Humanity & Inclusion will tip the balance so more Nepali children can thrive at school and become strong readers. The project, Reading for All, is possible thanks to a generous USAID grant.
The transformative project comes at a perfect moment. In 2017, Humanity & Inclusion (then working under the name ‘Handicap International’) conducted a pilot screening. With funding from World Education and UNICEF, our teams met children between the ages of four and seven years old to assess them for functional limitations. The teams found 26% of children were at risk of at least some kind of hearing, sight, mobility, communication, learning or concentration limitation, with 9.4% classified as having a disability.
“We are thrilled that USAID Nepal placed its trust in Humanity & Inclusion by funding this important reading project,” said Willy Bergogne, Country Director for the Nepal office of Humanity & Inclusion. “Together, we’ll reach thousands of Nepali children with disabilities, supporting them to achieve better reading outcomes and promoting inclusive education all over Nepal.”
The three-year project focuses on children in grades 1 – 3 in the 16 districts participating in Nepal’s early grade reading program. Working together with local and national partners, the project will improve data quality on children with disabilities.
The team will also enhance institutional and technical capacity to deliver quality reading instruction and support to children with disabilities. Currently, Nepal’s teachers are highly dependent on traditional teaching methods, with little supportive supervision and feedback from the children. The result is a significant communication gap between educator and learner. By 2021, Reading for All will have reached 6,775 head teachers in each of the targeted districts.
Finally, the team will test inclusive instructional models so they can benefit more children with disabilities. Trainers will ensure that teaching and curriculum development professionals in Nepal have the skills to improve and sustain the Reading for All tools and results.
Partnering for success
Partners at World Education, Nepal Association for the Welfare of the Blind, National Federation of the Deaf Nepal, and Disable Empowerment and Communication Center are helping to implement the Reading for All project.
“With strong partners in the Government of Nepal, among the USAID Nepal team, and with other local actors, this ambitious initiative is set up to help Nepali children with disabilities to succeed,” Bergogne adds.
In the project's first year, Reading for All will reach 2,071 schools in four districts (likely Banke, Surkhet, Bhaktapur, and Kaski). Teams will train head teachers, who will then lead early detection screenings for 178,117 children through grade 3. In its second year, after fine-tuning the process, Reading for All will roll out to the remaining 12 districts, reaching about 557,828 students.